Understanding the Experiences of Middle-Aged Filipino Parents of Children with Undiagnosed Neurodevelopmental Conditions in Rural Northern Philippines

This qualitative study investigated the everyday realities of six Filipino couples in the Northern Philippines caring for children with undiagnosed neurodevelopmental conditions (NDCs).  Employing in-depth interviews and Giorgi’s phenomenological analysis, the study revealed two dominant themes.  “Navigating the Demands of Developmental Caregiving” reveals a nuanced interplay of challenges that these parents face daily. The exploration of how navigating an ambiguous diagnostic landscape filled with significant socioeconomic and geographic limitations shapes parental roles, caregiving responsibilities, and the development of coping mechanisms. The second theme, “Finding Meaning in the Face of Uncertainty,” highlighted the adaptive coping strategies employed, specifically fostering strong family bonds and seeking solace from God. Results demonstrate an urgent need to create culturally fit interventions, improved diagnostic services, and comprehensive community support programs that cater to the unique needs of these middle adulthood couples (i.e., the competing demands from different areas of their life: their established careers, potential caregiving for aging parents, and the ongoing responsibilities of raising children). Future research should evaluate the long-term effects of these interventions and explore the effectiveness of different support models.